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One of the most depressing things is when people with relatively recent endometriosis diagnoses contact me looking for help, especially recommendations for medical support in this province or across Canada or even in France, and I suddenly have to prepare them for not only how few truly helpful ressources there are out there, but also for how truly traumatizing being an "expert lead patient" (a term utilised by Heather Guidone, director of the Center for Endometriosis Care in Georgia, USA, to describe endometriosis patients) will be.

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